Paediatric Neurodisability Lung Health Network

Connecting clinicians and researchers to improve respiratory health in children and young people with neurodisability.

About the network

The Paediatric Neurodisability Lung Health Network brings together clinicians and researchers interested in respiratory health in children and young people with neurodisability.

We are building a space to exchange knowledge, connect across disciplines and centres, and develop collaborative research. Our focus is on questions that matter in everyday care and on opportunities to learn together.

The network is in its founding phase. We welcome colleagues who would like to help shape its direction.

Areas of interest

Our interests span clinical care, research and the experiences of children, young people and their families.

Aspiration & swallowing

Dysphagia, aspiration and their relationship with respiratory health.

Airway clearance

Approaches to supporting cough and airway clearance across care settings.

Respiratory infections

Understanding infection burden, prevention and management.

Sleep & ventilation

Sleep-related breathing difficulties and respiratory support.

Secretion management

Shared questions around saliva, secretions and everyday respiratory care.

Outcomes & transition

Meaningful outcome measures, long-term follow-up and transition to adult services.

Our aims

  1. Connect people and centres

    Build relationships across specialties, professions and countries.

  2. Share knowledge and ongoing research

    Exchange ideas, discuss challenges and identify opportunities to work together.

  3. Develop collaborative projects

    Bring complementary expertise together around shared research questions.

  4. Shape research priorities and outcomes

    Work towards shared priorities, harmonised approaches and meaningful outcome measures.

Meetings & activities

Our first network meeting

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Our first meeting will be an opportunity to introduce interests, discuss priorities and explore next steps together.

The meeting link will be shared with those who register for the network.

Register for the network

Ideas for future activities

  • Research discussions and project updates
  • Sharing experience across disciplines
  • Collaborative workshops and webinars

Activities will develop with members’ interests and contributions.

Join the network

Are you a clinician or researcher with an interest in paediatric neurodisability and lung health? We would be pleased to hear from you.

To express your interest in joining, please complete our Google Form.

Complete the interest form

The form opens in Google Forms. Please share professional details only, without patient-identifiable information.

Contact

For questions about the network, meeting enquiries or potential collaborations:

Nadine Freitag